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Important Resources on Colon Cancer Genetics and Family Colon Cancer Syndromes
Our Cancer Genetics Resource List Will Help You Get The Information You Need

By Suzanne Dixon, MPH, RD, About.com

Updated: August 13, 2009

About.com Health's Disease and Condition content is reviewed by the Medical Review Board

Finding the Right Cancer Genetics Resources

Consult our helpful list of cancer genetics resources if you have questions about colon cancer genetics and familial (family) colon cancer syndromes.

Valuable Online Cancer Genetics Resources

The following list of websites will help you gather accurate information about colon cancer genetic and family (familial) syndromes.

The American Society of Colon and Rectal Surgeons Family History Registry list offers a way for you to find out more about research on genetic colon cancer syndromes and connect with researchers studying these conditions.
American Society of Colon & Rectal Surgeons. Family History Registries.

Gene Reviews: APC-Associated Polyposis Conditions offers detailed medical and genetic information about familial adenomatous polyposis (FAP) and related conditions.
Gene Reviews: APC-Associated Polyposis Conditions.

Gene Reviews: Hereditary Non-Polyposis Colon Cancer offers detailed medical and genetic information about Hereditary Non-Polyposis Colon Cancer (Lynch syndrome).
Gene Reviews: Hereditary Non-Polyposis Colon Cancer.

Gene Reviews: Juvenile Polyposis Syndrome provides offers detailed medical and genetic information about juvenile polyposis.
Gene Reviews: Juvenile Polyposis Syndrome.

Gene Reviews: Peutz-Jeghers Syndrome offers detailed medical and genetic information about Peutz-Jeghers Syndrome.
Gene Reviews: Peutz-Jeghers Syndrome.

The Genetic and Rare Diseases Information Center offers a searchable website and allows you to contact a genetic diseases information specialist to ask questions.
Genetic and Rare Diseases Information Center.

Genetics Home Reference. Familial adenomatous polyposis offers medical information and links to other FAP resources.
Genetics Home Reference. Familial adenomatous polyposis.

Genetics Home Reference. Hereditary Hemorrhagic Telangiectasia offers medical information and links to other HHT resources.
Genetics Home Reference. Hereditary Hemorrhagic Telangiectasia.

Genetics Home Reference. Lynch Syndrome offers medical information and links to other Lynch syndrome (hereditary nonpolyposis colorectal cancer (HNPCC)) resources.
Genetics Home Reference. Lynch Syndrome

Genetics Home Reference. Peutz-Jeghers syndrome offers medical information and links to other Peutz-Jeghers syndrome resources.
Genetics Home Reference. Peutz-Jeghers syndrome.

Colon Cancer Alliance. Genetics of Colon Cancer offers information genetic colon cancer syndromes, including suggested treatments to manage each condition.
Colon Cancer Alliance. Genetics of Colon Cancer.

Colorectal Cancer Coalition. Lynch Syndrome offers brief updates on the latest research about Lynch syndrome (hereditary nonpolyposis colorectal cancer (HNPCC))
Colorectal Cancer Coalition. Lynch Syndrome.

National Society of Genetic Counselors is the professional organization for trained genetic counselors and its website will help you find a genetic counselor in your area.
National Society of Genetic Counselors.

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